
Pictured above from left to right: Shimkus, Klueter-Thomas, Izard, and Davis.
O’ Fallon, IL (March 8, 2013) – Four staff and five volunteers attended the 22nd Annual National MS Society Public Policy Conference (PPC) in Arlington, VA from March 4-7, 2013. Over 300 MS Activists came together for a deeper dive into the National MS Society’s 2013 priorities: maintaining adequate funding for the FDA and for medical research at the National Institutes of Health and the Department of Defense.
Senator Byron Dorgan kicked off the conference on Tuesday, March 5, talking about what needs to be done to get the fiscal house in order, and relaying stories about his time in office. JP Paluskiewicz, deputy chief of staff to MS Caucus Co-Chair Rep. Michael Burgess, MD, detailed the current status of the federal budget, sequestration, and the current climate in Congress.
Veteran pollster Celinda Lake highlighted trends including the popularity of Congress and the ongoing partisan fights. Numerous other speakers, including MS Activists, presented information on medical research, the role of the FDA, engagement on-line and on-the-ground, and various other subjects.
MS Activists were scheduled to travel to the U.S. Capitol on the Wednesday, March 6, 2013 to meet with congressmen and legislators on Capitol Hill for PPC Hill Day. For the first time in PPC Hill Day history, all scheduled meetings between activists and legislators had to be cancelled due to a late winter storm that hit the area.
An improvised day took place with a second medical research question and answer session with Chief Research Officer Tim Coetzee, Reingold Inc. social media/communications/research expert Joe LaMountain, and additional networking roundtables.
Even though the Capitol was closed on Wednesday, Amy Klueter-Thomas (Edwardsville, IL), National MS Society Community Development Senior Manager and Troy, Maryville, and St. Jacob Chamber of Commerce Board Member, and volunteer Steve Izard (Alton, IL) from the Gateway Area Chapter still met with two of their appointed legislators. While awaiting departure at Reagan International Airport, Klueter-Thomas and Izard met Representative John Shimkus (R – IL 15) and Representative Rodney Davis (R – IL 13).
After Congressmen Shimkus and Davis learned their visits with MS Activists were canceled, they each invited Klueter-Thomas and Izard to sit and talk with them about National MS Society’s priority issues. Both congressmen were asked to join the MS Caucus and are reviewing the materials before they make a decision. Klueter-Thomas will follow up with both congressmen toward the end of March.
About Multiple Sclerosis
Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS.
Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 6,900 individuals here in the Gateway Area Chapter and more than 2.1 million people worldwide.
About the National Multiple Sclerosis Society
The National MS Society addresses the challenges of each person affected by MS. To fulfill this mission, the Society funds cutting-edge research, drives change through advocacy, facilitates professional education, collaborates with MS organizations around the world, and provides programs and services designed to help people with MS and their families move forward with their lives.
In 2012 alone, the Society invested $43 million to support 350 research projects around the world while providing programs and services that assisted more than one million people. The Society is dedicated to achieving a world free of MS. Join the movement at www.nationalMSsociety.org. You may also contact your local Gateway Area Chapter at www.gatewayMSsociety.org or 314-781-9020.
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